Anyone who has or knows someone affected by a CHD is welcome, as is anyone who doesn’t but would like to show their support and/or find out more about this defect. It is not solely for the UK as we would like to help as many people as possible. It affects people all around the world.
Do you have an hour spare a day?
Are you good with social media?
Are you empathetic?
If so, then you maybe who we are looking for.
We are looking for two people to run our Twitter account, if you are interested then get in touch with Rachel on admin at CHD-UK
- To educate and raise awareness of Congenital Heart Defects.
- To support and help adults, young people, children and their familiesALL over the UK.
- Help with ongoing research on or into Congenital Heart Defects.
- Promote/Campaign for the need for testing prior to birth with the use of (Echocardiograms) and on newborns (neonatal).
- To get the media more interested in what it means to be born with a CHD and what the future is like for first generation of survivors.
- To get the media to inform the general public correctly about CHDs.
- To educate the public the differences between congenital heart defects and coronary heart disease.
This has now become mandatory: Pulse oximetry on all newborns (neonatal).
Just imagine that you work with people every day and never noticed that they have a heart defect or went through major surgery. You wouldn’t know just by looking at the person. CHD is not visible, our scars are hidden.
Organ Donor Register:
In memory of: Lewis Prior and Zoe Chambers and all those who have lost their lives to congenital heart defects
If you haven’t signed up to become a donor yet, then please click on the ‘Signed up yet?’ picture
Please help us to improve this website: if there are any inaccuracies on our pages, please email us with what is wrong, what you would put instead, and a reference that we can check.